The Patient Cancer Care Improvement (PCCI) Group contains people who have been affected by cancer and volunteer their time and experiences to improve cancer care on the Fylde Coast. The group meets on a monthly basis, usually (but not always) on the second Thursday of the month, from 2pm to 4pm.
To join the group or find out more, contact Lucy Mitchell by emailing firstname.lastname@example.org or call 01253 955710. You may also have a read of the group’s terms of reference PCCI Group terms of reference February 2019 (doc | 38 KB) .
In 2017/18, the group developed a transport directory as a solution to a high number of missed urgent cancer appointments. Research carried out by Blackpool Teaching Hospitals and Cancer Research UK found there were high rates of non-attendance of these appointments by people who live in Lytham or Fleetwood. It was found these areas had poor public transport links with no direct routes to the hospital. The group produced a transport directory booklet which includes initiatives such as the NoW Travel Card, travel reimbursement schemes, information on parking and public transport journey planners.
Following a presentation to Blackpool Transport, the company offered to fund the booklet which will be printed soon.
A second PCCI group has been launched in an evening in order to engage with lesser heard voices. An equality impact and risk assessment was carried out and found that the voices of young people and those who worked were not being heard due to engagement opportunities taking place in the day. An evening group now takes place at Blackpool Hospital. They meet on a quarterly basis and are looking at improving opportunities for people who are less likely to access support, notably young people, people in work and men. This summer they launched the ‘Macmillan Meet-up’ initiative involving out of hours support sessions.
‘With cancer I can…’ calendar
People living with cancer on the Fylde Coast have shown how they have been able to get on with their lives in spite of the disease – by taking part in an inspirational new calendar. From trekking across Iceland to gardening and enjoying time with family, the calendar reminds cancer patients that a diagnosis doesn’t have to put an end to enjoying life.
The pictures selected for the calendar – given free to every patient diagnosed or undergoing a new round of treatment in 2019 – came from a competition run by the Fylde Coast ‘living with and beyond cancer’ team, based at Blackpool Victoria Hospital.
Click the links below to view a summary of discussions which took place at recent meetings
April - June 2018
- The PCCI group began the process of restructuring the format of their meetings and undertook its first successful workshop. In this workshop it produced a hospital transport directory in response to research carried out by Marion Bennie (service improvement facilitator at Blackpool Teaching Hospitals) and Cancer Research UK. The directory was co-produced with local health services but led by the PCCI group.
- David Baxter was re-elected as the chair and Wendy Hepworth as the vice-chair of the PCCI group for another 12 months.
- The group contributed to the production of a small concertina card of useful local contacts and information (who to call if you’re worried, information on free prescriptions) which would be distributed to all newly diagnosed patients.
- Members attended the learn and share event held by the Cancer Alliance. They were able to share their work and experiences with representatives from other areas and contribute to Alliance-wide conversations.
- The group fed into the ‘Time to give a s#!t’ bowel cancer campaign, giving direction and steer to the campaign from a patient and public perspective.
July - September 2018
- The PCCI group began working on an NHS England initiative called ‘Always Events’. This involves creating an initiative which addresses a gap and then implementing it and ensuring it always happens. The group decided to create an initiative to make information given at diagnosis more personalised and manageable. It assessed research including surveys and information reviews, met with clinical nurse specialists and began developing an ‘information prescription’ checklist which broke down essential information at diagnosis and signposted to key areas. This initiative is in partnership with the Blackpool Teaching Hospitals patient experience team.
- The group contributed to improvements to health and wellbeing events including the re-design of the service user involvement and engagement presentation.
- The transport directory was presented to Blackpool Transport by PCCI members who were pleased to collaborate on the design and production of the directory.
October - December 2018
- Blackpool Transport agreed accountability for the transport directory and agreed to fund the first run of directories.
- PCCI group supported a trainee psychology with her doctorate completing research into psychological support for patients with cancer of unknown primary (CUP). The group contributed to research materials and ethical considerations.
- Members supported the development of new follow-up pathways for prostate and bowel cancer.
January - March 2019
- PCCI members judged the 2019 cancer calendar (With Cancer I Can …) and selected three photo winners. Steve Tingle, a PCCI member, was also selected as a photo winner by another group of judges.
- Concerns were raised over reduction in members of the PCCI group.
- The group collaborated with urology cancer nurses on the ‘Always Event’. The urology nurses agreed to pilot the initiative which would be called ‘Your Information Prescription’ and would include a simplified checklist and signposting guide to services and information.
- The group met with Blackpool Carers’ Centre to discuss initiatives and support for carers of people affected by cancer.
- Members agreed the group would look at the cancer page on the Blackpool Teaching Hospitals website to see how it can be improved for easier navigation.
- The group discussed how the Macmillan team can get the best out of the recently appointed eight cancer buddies.
- Support continued for the health services transport directory which the group helped to set up in conjunction with Blackpool Transport. Funding has been confirmed and future editions may include tram services.
- Urology nurses fed back that the ‘information prescription’ has been very well received by both patients and staff. Information on the prescription will be reviewed in future to ensure it remains up to date. The template may be used on a wider basis by the Cancer Alliance.
- The group hosted a special celebration event on 3 December showcasing what the PCCI group does and including a number of presentations and interactive discussions.
- Members have supported the hospitals trust in the development of a business plan for a community cancer hub. A fashion show was held in October to raise funds towards the hub.